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UID:3105@dev.dscc.uic.edu
DTSTART;TZID=America/Chicago:20230506T090000
DTEND;TZID=America/Chicago:20230506T160000
DTSTAMP:20230421T213644Z
URL:https://dev.dscc.uic.edu/events/virtual-and-in-person-nord-living-rare
 -forum/
SUMMARY:Virtual and In-Person - NORD Living Rare Forum
DESCRIPTION:An annual\, patient-focused hybrid conference giving people liv
 ing with rare diseases and their families practical tools for living their
  best lives with rare diseases\n\nJoin the National Organization for Rare 
 Disorders (NORD) for the 2023 Living Rare Forum on May 6 from 9 a.m. to 4 
 p.m.\n\nIndividuals may attend virtually or in-person at the Renaissance W
 ashington D.C. Downtown Hotel\, 999 Ninth St. NW.\n\nThis patient and fami
 ly-focused event will provide connections\, real stories and practical kno
 wledge to help you and your loved ones live your best rare life.\n\nTopics
  will include:\n\n 	A keynote speaker who will share her story of being di
 agnosed with two rare disorders\n 	Exploring ways to navigate life while c
 oping with uncertainty\n 	Coping mechanisms and approaches to overcoming b
 arriers for adults with rare disorders\n 	How to participate in rare disea
 se research\n 	New innovations that are helping advance the diagnosis\, tr
 eatment and care of rare disease patients\n\nThe Living Rare Forum is free
  for patients and caregivers.\n\nYou can  see the full agenda for more de
 tails.\n\nFind the event pricing and sign up at livingrare.org.
CATEGORIES:Conference
LOCATION:Renaissance Washington D.C. Downtown Hotel\, 999 Ninth Street NW\,
  Washington\, District of Columbia \, United States
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