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UID:2280@dev.dscc.uic.edu
DTSTART;TZID=America/Chicago:20220428T130000
DTEND;TZID=America/Chicago:20220428T140000
DTSTAMP:20220412T145108Z
URL:https://dev.dscc.uic.edu/events/webinar-walk-in-our-shoes-the-experien
 ce-of-rare-disease-patients/
SUMMARY:Webinar - "Walk in Our Shoes: The Experience of Rare Disease Patien
 ts"
DESCRIPTION:&nbsp\;\n\nA discussion with rare disease patients from underse
 rved populations for patients\, caregivers\, advocates\, researchers and h
 ealthcare providers\n\nThe National Organization for Rare Disorders (NORD
 ®) and the Rare Disease Diversity Coalition (RDDC) will host "Walk in Our
  Shoes: The Experience of Rare Disease Patients" on April 28 from 1 to 2 p
 .m.\n\nThis webinar puts the focus on equity in rare disease healthcare.\n
 \nJoin this discussion with rare disease patients from underserved populat
 ions to learn about their experiences living with rare disorders and their
  perceptions of diversity\, equity and inclusion during the healthcare jou
 rney.\n\nMembers of the public and the rare disease community are encourag
 ed to participate.\n\nLearn more about the speakers and register online. 
CATEGORIES:Webinar
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