Resource Directory
Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs.
You can use the search box below to narrow your view. For example, you can search for support groups, respite, grant programs, a specific topic or by condition.
You can also browse by category or by region using the links on the right side of this page.
Here is a quick video showing how to use the search and display features for our resources and events.
Check back often for updates. If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
Education Resources
Early Intervention Clearinghouse
The Illinois Early Intervention Clearinghouse is a lending library and information resource for families and professionals interested in or involved with the Illinois Early Intervention (EI) Program.
It offers tip sheets and guides for families, resources for EI staff and providers, and a lending library.
US Department of Education
Site focusing on national efforts to improve education, promote new initiatives and partner with families to benefit children.
College Illinois! 529 Prepaid Tuition Program
The College Illinois! Prepaid Tuition Program was established in 1997 to help make college a reality for Illinois families. College Illinois! helps to lock in the cost of college by allowing Illinois families to prepay for future tuition at today’s plan rates.
Family Resources
Spanish Coalition for Housing (SCH)
The Spanish Coalition for Housing (SCH) seeks to build generational wealth through housing counseling, financial education, advocacy and by connecting low-to-moderate income households to resources that create housing stability, homeownership and economic mobility. Services are based in Chicago and include workshops, homebuyer education, homeowner education and counseling, landlord certification and more. SCH programs also include:
- Financial education and coaching
- Rental and mortgage help
- Utility assistance
- Health and housing
Puentes de Esperanza (Bridges of Hope)
Hoyleton Youth & Family Services‘ Puentes de Esperanza (Bridges of Hope) serves Spanish-speaking families in Clinton, Madison, Monroe, Randolph and St. Clair counties. Puentes de Esperanza connects Hispanic families to community resources, including interpretation and translation, finding employment, immigration and citizenship information and other resources.
Puentes de Esperanza also:
- Partners with the Illinois Coalition for Immigrant and Refugee Rights (ICIRR) to help immigrants know their rights
- Hosts mobile events with the Illinois Secretary of State Department of Motor Vehicles
First Hand Foundation‘s pediatric medical grants provide vital financial assistance to uninsured or underinsured children up to 18 years old. The grants aim to help children receive timely, life-changing treatment that improves their health and quality of life. Families can apply for grants to cover critical medical expenses such as surgeries, prescriptions, medical equipment and travel costs. Each child is eligible for one grant every 12 months.
Learn more about applying for a grant, covered expenses and eligibility on First Hand Foundation’s website.
There will be five opportunities to apply for First Hand Foundation 2025 grants:
- July 16 to Aug. 15
- Aug. 16 to Sept. 15
- Sept. 16 to Oct. 15
- Oct. 16 to Nov. 15
- Nov. 16 to Dec. 15
Medical/Health Resources
Get Covered Illinois - The Official Health Insurance Marketplace Resource
Get Covered Illinois is the health insurance Marketplace resource for the state of Illinois. Get Covered Illinois provides information about health insurance coverage provided under the Affordable Care Act (ACA).
Get Covered Illinois provides:
- Information and support to help Illinois residents understand insurance and the importance of health insurance coverage
- Access to health plans through Healthcare.gov
- Free enrollment help from Get Covered Illinois Navigators by phone or in person in multiple languages and in your community
Get Covered Illinois is a division of the Illinois Department of Insurance (IDOI).
Generation Patient is a nonprofit organization created by and for young adult patients with chronic, complex, rare or undiagnosed medical conditions. The organization’s focus includes providing peer-support groups, roundtable discussions and helping to drive systems-level change through policy work, leadership programming and advocacy initiatives across healthcare and research spaces.
Generation Patient also offers:
- “Creating Spaces for Young Adults with Chronic Conditions,” a step-by-step toolkit with resources and strategies for finding and creating peer support
- Virtual community-led peer-support groups for young adults (ages 18 and up), including:
- A general group for young adults with chronic and rare medical conditions,
- A higher education group for patients in college or graduate school,
- A group for young adults with irritable bowel disease (IBD)
The Child Mind Institute’s Family Resource Center provides information for parents, caregivers and others supporting children struggling with mental health, behavior or learning challenges. Resources include parenting guides, a glossary of terms and up-to-date information on learning and behavior disorders, sensory processing, milestones and more.
The Child Mind Institute offers a variety of free parenting guides in English and Spanish. Guide topics include: