Resource Directory
Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs.
You can use the search box below to narrow your view. For example, you can search for support groups, respite, grant programs, a specific topic or by condition.
You can also browse by category or by region using the links on the right side of this page.
Here is a quick video showing how to use the search and display features for our resources and events.
Check back often for updates. If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
Education Resources
QuestBridge is a nonprofit that connects high-achieving students from low-income backgrounds to scholarships, financial aid and other learning opportunities to help them attend top colleges nationwide. QuestBridge also provides a Student Resource Center featuring a student workbook, checklists and tips for preparing, applying and paying for college. Its programs include:
- The College Prep Scholars Program helps high school juniors become strong applicants to top colleges.
- Quest for Excellence Awards provide high school juniors opportunities to receive scholarships, laptops and funding for partner college visits.
- The National College Match is the next step for high school seniors. College Match participants can apply for free to colleges and be considered for early admission and a full four-year scholarship.
- The QuestBridge Regular Decision program provides finalists who do not match an opportunity to be considered for admission and financial aid through a partnering college.
Visit the QuestBridge website for up-to-date program information, application deadlines and information about other programs.
Ladder Up provides free programs to eligible Chicagoland residents to help move up the economic ladder. Individuals can receive guidance in financial education, tax help and preparation, and turning the dream of college into reality. Ladder Up programs and services include:
- The Tax Assistance Program
- The Legal Tax Clinic
- Financial aid for college workshops
- Financial education workshops
- Tax tips for self-employed/small business owners
The Guthrie-Koch Scholarship for Individuals with Certain Metabolic Disorders
The Guthrie-Koch Scholarship from flok is for individuals with one of several metabolic disorders. The scholarship is for students demonstrating character, academic achievement and engagement with their community, and who are pursuing post-secondary educational or vocational opportunities. Students from any country can apply. Scholarship applications open by mid-December each year. Applications are due in mid-March.
To be eligible for the scholarship, applicants must have one of these metabolic disorders:
- Classical HCU
- Maple Syrup Urine Disease (MSUD)
- An Organic Acidemia
- Phenylketonuria (PKU)
- Tyrosinemia
- Urea Cycle Disorder (UCD)
Family Resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
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The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377)
- Statewide Coordinator Tammy Foster at tfoster@illinoisrespitecoalition.org or (866) 455-7377, ext. 104
- Spanish-speaking callers may call (866) 455-7377, ext. 103
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
Medical/Health Resources
Get Covered Illinois - The Official Health Marketplace
If you are looking for health insurance for yourself or your family, or if you own a small business or lead a nonprofit organization this website is the official site in Illinois for signing up for health insurance.
UIC College of Dentistry Inclusive Care Clinic in Chicago
The Inclusive Care Clinic (ICC) from the University of Illinois Chicago’s College of Dentistry offers comprehensive, preventative and integrated (multidisciplinary) dental treatment for patients 15 years or older with a wide range of physical and developmental disabilities. The ICC serves individuals with autism, physical disabilities, intellectual and developmental disabilities, and behavioral and other conditions.
The clinic includes:
- A sensory room
- A wheelchair lift
- Private treatment rooms
- Noise-cancelling headphones
- Personal entertainment tablets
- Weighted blankets
The St. Louis Dental Center offers comprehensive special care dentistry for patients with intellectual, physical and emotional disabilities and other special healthcare needs. It is a partnership of A.T. Still University (ATSU) and Affinia Healthcare.
The center’s special care suites include a wheelchair lift. The center accepts Medicaid and most dental insurance plans. Discounts are available to uninsured patients.