Resources for Bond
The PKU Organization of Illinois provides resources and support to teens, adults and families with PKU and 16 allied disorders. Their website includes information about understanding and managing phenylketonuria (PKU), diet, local resources, events, what...
The National PKU alliance provides information including the latest research, a guide for new parents, educational videos, cooking and food, personal stories, scholarships, and legislation and policy. Individuals impacted by Phenylketonuria (known as PKU) may...
LifeLine Pilots is a non-profit group providing free air transportation to patients seeking a second opinion or in need of treatment at a clinic far from home for non-emergency medical needs. The organization serves individuals...
The Illinois Assistive Technology Program (IATP) provides expertise in assistive technology and accessible information technology to all Illinois residents of all ages with disabilities and/or health conditions including family members, friends and caregivers. IATP provides...
Equip for Equality is an independent agency whose primary goal is protecting the civil and human rights of citizens with disabilities. Equip for Equality offers assistance that includes: Self-advocacy assistance Legal services Monitoring Training
Information and technical assistance on the Americans with Disabilities Act.
The National Organization for Rare Disorders (NORD) offers support, information and a variety of events for clinicians, researchers, patients and families affected by rare diseases. NORD’s Resource Center provides patients and caregivers with free webinars,...
ComeUnity is a parent support website with resources on parenting children with special needs, adoption, child development and multiple lists of groups and organizations providing information on specific topics or areas. Visit www.comeunity.com/index.html.
PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. It serves families across the nation. Parents can find publications, workshops and...
The American Cleft Palate – Craniofacial Association (ACPA) is a non-profit association of individuals and healthcare professionals who are interested in clinical care and research advancements for those affected by cleft and craniofacial conditions. ACPA...