Resources for Cook
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Project Mobility is a nonprofit organization that offers recreational events using specialized bicycles for people with disabilities. Its professional staff works with families, rehabilitative professionals and organizations to promote better health, independence, and most of...
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Protecting Renter and Homeowner Rights During Our National Health Crisis
The National Housing Law Project has put together a list of resources regarding renter and homeowner rights during the COVID-19 national public health crisis.
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Protecting Youth Mental Health – U.S. Surgeon General’s Advisory
The U.S. Surgeon General has released a report that highlights the critical state of youth mental health and the impact of COVID-19. It includes suggested actions and resources for family members and caregivers as well...
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Providing and Receiving Respite Care Safely During the COVID-19 Pandemic
The ARCH National Respite Network and Resource Center provides these voluntary national guidelines for “Providing and Receiving Respite Care Safely during the COVID-19 Pandemic.” The guidelines provided in this document are designed to assist providers...
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Providing Services to Children With Disabilities During the COVID-19 Outbreak
The U.S. Department of Education provides questions and answers on providing services to children with disabilities during the coronavirus disease 2019 outbreak.
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PTSD During a Pandemic for Parents with Medically Fragile Children
It’s not uncommon for parents and caregivers of children with neurologic conditions to experience PTSD. In this video from the Child Neurology Foundation, a caregiver and a psychologist discuss the impact that this has –...
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QuestBridge is a nonprofit that connects high-achieving students from low-income backgrounds to scholarships, financial aid and other learning opportunities to help them attend top colleges nationwide. QuestBridge also provides a Student Resource Center featuring a...
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Questions and Answers About COVID-19 Vaccines
Children’s Hospital of Philadelphia provides answers to some of the most common questions people are asking about COVID-19 and vaccines.
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Rare Caregiver Respite Program
The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parent, spouse, family member or significant other) of a child or adult diagnosed with a rare disorder. The Respite Program provides financial assistance...
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Rare Sisters Batten Foundation
The Rare Sisters Batten Foundation (RSBF) supports the development of medical research for treatments and cures for CLN3 Batten Disease and also provides monetary assistance to families with children diagnosed with Batten Disease, a neurodegenerative...