Resources for Iroquois
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Conquering CHD provides awareness, knowledge, community and research to conquer the most common birth defect, congenital heart disease/defects (CHDs). The Conquering CHD website includes resources to help patients and caregivers understand CHDs from childhood through...
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Conquering CHD Transition Checklist
Conquering CHD has put together a Conquering CHD Transition Checklist to help youth with congenital heart disease manage their own care as they reach adulthood and move from their pediatric doctor to an Adult Congenital...
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The Institute for Healthcare Improvement (IHI) provides free Conversation Guides to help you have the conversation with a family member, friend, or other loved one about your – or their – wishes regarding end-of-life care...
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Cook For Love is a nonprofit organization providing support, resources and education to individuals, families and clinicians managing phenylketonuria (PKU). The site empowers members of the metabolic disorders community to improve their health through cooking...
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Yoga, mindfulness and relaxation designed specially for kids ages 3 and older.
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The Courageous Parents Network aims to empower, support and equip families and providers caring for children with serious illness.
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The Centers for Disease Control and Prevention (CDC) provides a series of YouTube videos on COVID-19 with information in American Sign Language.
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COVID-19 Preparedness Tool for Families and Caregivers
The Stanford Health Literacy Lab in collaboration with families and providers developed the COVID-19 Preparedness Tool for Families and Caregivers to help families of children with special healthcare needs with rpreparing for and responding to...
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COVID-19 SERIES, Part 1: Put On Your Own Oxygen Mask First
This Family Voices Resources eBlast shares resources for self-care and asks us to consider what happens if we get sick, with related types of emergency planning to consider in order to be prepared. Spanish Version
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COVID-19 Vaccine Preparation Checklist for Kids
The COVID-19 vaccine is now recommended for children ages 6 months old and up. To help you prepare for your child’s vaccination, the American Academy of Pediatrics (AAP) provides information about the vaccine and a...