Resources for McHenry
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The PKU Organization of Illinois provides resources and support to teens, adults and families with PKU and 16 allied disorders. Their website includes information about understanding and managing phenylketonuria (PKU), diet, local resources, events, what...
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PKU Resources from University of Louisville School of Medicine
The University of Louisville School of Medicine website provides a wide range of PKU (Phenylketonuria) resources to support families. The Family PKU Booklet provides information for families after a positive newborn screening. Using illustrations and...
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Plain Language Booklet on COVID-19 for People With Disabilities
Information from the Self-Advocacy Resource and Technical Assistance Center. English Version Spanish Version
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Plain Language COVID-19 Resources
The Arc has made free plain language COVID-19 resources for disability advocates. You can fill out a short form on The Arc’s website to access these resources, which include plain language videos explaining the coronavirus...
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Plan to Achieve Self Support (PASS)
The Plan to Achieve Self Support or PASS for people with disabilities is a written plan of action for getting a particular kind of job or starting a business offered by the Social Security Administration. ...
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A portable medical summary is helpful for summarizing your medical information in one to two pages. You can use this summary across healthcare systems, including: With the emergency department In the transition to adult providers...
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Positive Parenting in COVID-19 Isolation
Parenting experts have created a new set of evidence-based resources for parents and caregivers to support their children’s growth – and interact with them constructively – during this time of confinement.
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Prairie State Legal Services is an organization that offers free legal services for low-income persons and those age 60 and over who have serious civil legal problems and need legal help to solve them. There are 11 office locations serving 36...
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Preparations for Caregivers During COVID-19 and Beyond
Parents and caregivers of children with medical complexity often focus solely on their child’s health and wellbeing. But what happens when the parent/caregiver gets sick? It’s a crucial question that families must consider. Advance preparations...
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Preparing For College When You Have Congenital Heart Disease
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s...