Family Support Resources
Postpartum Support International
Postpartum Support International (PSI) provides a worldwide network of peer support, information, professional trainings and coordinators in all U.S. states. Its mission is to promote awareness, prevention and treatment of mental health issues related to childbearing in every country worldwide. PSI has more than 400 local support volunteers who provide support, information, encouragement and connection with local providers and support groups.
PSI offers 50-plus free online support groups to connect with other parents, including groups for special needs and medically fragile parenting, birth trauma support, neonatal intensive care unit (NICU) postpartum parents and more. PSI also moderates closed Facebook groups for moms and dads.
PSI also has a helpline for anyone to get basic information, support and resources. You can call or text daily from 7 a.m. to 10 p.m. central standard time at:
- Call (800) 944-4773 for English and Spanish support
- Text in English to (800) 944-4773
- Text en Español to (971) 203-7773
Resources are available in English and Spanish.
Project SUN in Kankakee County
Project Strong and Unified Network (Project SUN) is a family-driven, youth-guided and community-based system of care in Kankakee County. Project SUN provides resources, training and community education about children’s behavioral health and other child and family wellness topics. Its services include:
- Helping families navigate their children’s mental, emotional and behavioral health systems of care through trained staff and volunteer Community Navigators
- Supporting families on their journey by training peer parent mentors and companions and offering appreciation events for caregivers
- Assisting parents and youth to gain the skills necessary to actively participate in their care planning and delivery
- Offering professional development training for mental, emotional and behavioral health service providers
- Providing community education with a focus on children and their families
Project Sweet Peas is a national non-profit organization providing support to families and caregivers of premature or sick infants and families impacted by pregnancy and infant loss. Programs include neonatal intensive care unit (NICU) care packages, remembrance memory boxes, peer-to-peer support groups and NICU family financial aid, hospital events, remembrance vigils and educational materials.
Project Sweet Peas also offers:
- A NICU Family Navigation & Support (Project Sweet Peas) group on Facebook
- Journal workshop for NICU and bereaved parents
- Downloadable mental health worksheets
- A list of area locations nationwide
Salvation Army of Southern Illinois in Marion
The Salvation Army of Southern Illinois in Marion provides financial assistance with food, rent, utilities, and clothing for families and individuals across southern Illinois.
For questions or food pantry hours, please contact Darla Harms at (618) 993-5854 or darla.harms@usc.salvationarmy.org.
Sangamon County Health Department
The Sangamon County Health Department protects, promotes and works to improve the health and well-being of all individuals and families in Sangamon and Menard Counties. Programs and services include vaccination clinics and other health services for children and adults, a discount card for medications, medication and sharps disposal, and more.
The Shirley Ryan AbilityLab is a nonprofit hospital providing patient care, a research community focused on physical medicine and rehabilitation, clinical trials and a wide range of resources to help with caregiving, adapting and accessibility. Based in Chicago, the Shirley Ryan AbilityLab provides help with pediatric and adolescent rehabilitation, spinal cord injuries, brain injury recovery, limb loss and impairment, stroke and more.
Shirley Ryan Abilitylab’s Henry B. Betts, MD, Learning, Innovation, Family and Empowerment (LIFE) Center also offers resources to help empower people living with chronic, cognitive and physical impairments and diseases affecting function. Resource topics include:
- Caregiving and equipment
- Housing and transportation
- Inspiration and hope
- Support and wellness
- Recreation and leisure
- Medical information and care
- Education and employment
Siblings with a Mission is an international organization that supports siblings and families of individuals with complex health conditions and developmental disabilities. The organization serves both siblings and sibling supporters (parents, grandparents, friends, healthcare providers, professionals, etc.) of all ages and backgrounds. It provides:
- Sibling support groups focused on a specific diagnosis or disability
- SibSpot, a place where siblings and sibling supporters can read stories about sibling heroes and meet other siblings from around the world
- Resource lists and more
Sickle Cell Disease Association of Illinois
The Sickle Cell Disease Association of Illinois provides resources, education and support for individuals with sickle cell disease (SCD) and their caregivers. Its website includes information about:
- Current SCD treatment options
- Virtual monthly support groups on Zoom
- GroupMe app support groups (the app is for use on cell phones or computers)
- SCD testing and newborn screening
- Scholarships and camp opportunities
- Events
The Social Security Administration (SSA) offers toolkits for people with sickle cell disease and professionals navigating the disability application and evaluation process. The toolkits provide detailed information, examples of the types of medical evidence required for individuals with sickle cell disease, and tips to help with the disability application and evaluation process:
Southern Illinois University Center for Autism Spectrum Disorders in Carbondale
The Center for Autism Spectrum Disorders (CASD) at Southern Illinois University is an interprofessional training and research center providing information and services to area residents with autism spectrum disorder (ASD) and their families. CASD offers ASD screenings, clinical services for children, adolescents and adults, webinars and support.
CASD faculty and students provide a variety of training and services, many at no cost to families and their children. Help is available in the following areas:
- Speech/language
- Social skills
- Emotional-behavioral concerns
- Toileting
- Sleep
- Picky eating and more
For more information, call (618) 453-7130 or email autism@siu.edu.