General Resources
Epilepsy Foundation of Greater Southern Illinois
The Epilepsy Foundation of Greater Southern Illinois aims to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. Its programs include epilepsy and seizure support services, home-based services, residential services, epilepsy education programs, support groups, a scholarship and more.
Its website also provides resources including a New to Epilepsy Guide, Seizure Calendar and more.
Epilepsy Foundation of Greater Southern Illinois’ Camp Roehr
The Epilepsy Foundation of Greater Southern Illinois (EFGSI) hosts an annual, overnight camp for children and teenagers with epilepsy. Camp Roehr provides campers ages 6 to 17 with seven days of fun, building friendships and learning about living with epilepsy. Camp registration typically begins in mid-April. Participant requirements include:
- Living in Illinois or surrounding states
- Having a primary diagnosis of epilepsy and well-controlled seizures
- Being able to care for their own basic needs and ready for an overnight camp experience
Equestrian Connection in Lake Forest
Equestrian Connection provides therapy programs for children and adults with mental, emotional and physical challenges and disabilities. Programs include hippotherapy, therapeutic riding, art therapy, job training and more. Class instructors are clinically licensed occupational and physical therapists, experienced clinicians and instructors, and trained volunteers.
Programs are available in individual and group settings. For more information, call Equestrian Connection at (847) 615 8696.
Etiquette: Interacting with People with Disabilities
People with disabilities are individuals with families, jobs, hobbies, likes and dislikes, and problems and joys. While the disability is an integral part of who they are, it alone does not define them.
RespectAbility offers tips and resources to educate the public about etiquette and interacting with people with disabilities. Featured information includes:
- A disability sensitivity training video from the D. C. Office of Disability Rights
- The United Spinal Association’s Disability Etiquette booklet (Spanish) (Chinese)
Every Step of the Way Resource Center for Adults with Intellectual Disabilities
Every Step of the Way (ESW) takes a hands-on, person-centered approach to providing support, networking opportunities and resources for individuals with mild to profound intellectual disabilities ages 20 and up and their parents/caregivers. ESW seeks to create a community where parents/caregivers in Chicago can:
- Find resources for recreation, education, health (mental and physical), social and daily living skills, and behavioral intervention services
- Network with each other
- Brainstorm and collaborate to create programming and develop opportunities for their adult children
- Advocate and network to accommodate the needs of their adult child and the adult children in the ESW community
Eviction Help for Illinois Residents
Eviction Help Illinois is a non-profit organization providing free legal aid, mediation services, and connections to other resources including rental assistance to increase housing stability.
Exceptional Children’s Charities
Exceptional Children’s Charities provides resources to benefit exceptional children with special needs in Chicago’s Southland.
The charity can provide financial support to supply wheelchairs, stand-up chairs, medical supplies, special learning tools and adaptive technology devices to foster learning and improve day-to-day life. Assistance can also be provided for medical and dental bills that are not covered by insurance or public aid.
Family Connections with Pediatrics
“Family Connections with Pediatrics” is a series of family-written blogs summarizing research articles in Pediatrics Journal. Each blog explains the “scientific literature” findings and what they may mean for families, including:
- Examples of how the findings apply to real-life situations
- Suggestions for ways that families and healthcare professionals can work together for the health and well-being of children and families
Family Economic Mobility Toolkit
The “Family Economic Mobility: Taking Charge of Your Future” toolkit offers families help to set financial goals and create action plans for tracking progress. The toolkit includes a series of videos and an online resource guide with links to agencies and support programs.
The U.S. Department of Health and Human Services’ (HHS) Administration for Children and Families provides the toolkit.
Family Voices “My Language, My Care” Language Access Rights and Services Course
Family Voices’ “My Language, My Care” is a free online, plain language course to help increase awareness, understanding and use of language access rights and services for families whose preferred language is not English. The course is available in English, Spanish, Chinese and American Sign Language.
Family Voices’ My Language, My Care course will provide:
- An understanding of their rights under the law
- Information about interpreter confidentiality
- Tools to advocate for high-quality language access services in the healthcare setting
- A certificate of completion after finishing all six modules of the training course
- Access to a free toolkit with information from the course in English, Spanish and Chinese