Resource Directory /

General Resources

  • Muscular Dystrophy Association

    The Muscular Dystrophy Association (MDA) provides comprehensive information and resources to help with understanding, managing and living day-to-day with muscular dystrophy and related neuromuscular diseases.

    MDA programs and resources include:

    • The MDA Resource Center providing one-on-one support by phone or email for individuals and families looking for resources, activities and more
    • Durable Medical Equipment (DME) Grant Program
    • Nationwide summer camps
    • Resources for caregivers
    • Community education and services

  • My Pantry Express

    Northern Illinois Food Bank has launched My Pantry Express, an online source for groceries. The program allows families in need of food assistance to choose specific grocery items and pick them up at a preferred participating location.

    Pickup locations are available in the following counties: DeKalb, DuPage, Lake, Will, Winnebago.

  • National Alliance for Caregiving

    The National Alliance for Caregiving (NAC) is a non-profit coalition of national organizations providing research, advocacy and innovation to make life better for family caregivers. The Alliance’s research, programs and resources include:

  • National Alliance for Children’s Grief

    The National Alliance for Children’s Grief (NACG) is a nationwide, nonprofit organization that raises awareness about the needs of children and teens who are grieving a death. NACG provides education and resources for anyone supporting a child grieving the loss of a loved one.

    In addition to support toolkits on a range of topics, NACG also provides:

    Information on how to talk about death to children
    Online learning and webinars
    A grief support resource library

  • National Alliance for Children’s Grief (NACG)

    The National Alliance for Children’s Grief (NACG) raises awareness about the needs of children and teens who are grieving a death and provides education and resources for anyone who supports them. NACG resources include:

    • Free GriefTalk Live events
    • Webinars and continuing education
    • Peer networking

  • National Association for Down Syndrome

    The National Association for Down Syndrome (NADS) serves individuals with Down syndrome and their families. NADS’ website provides a variety of webinars, publications and resources for the Chicago metropolitan area and beyond.

    NADS also offers a “Congratulations Basket and Referral Program.” Please note that the organization can only deliver baskets to specific Chicago-area hospitals.

  • National Association of the Deaf

    The National Association of the Deaf (NAD) preserves and promotes the civil, human and linguistic rights of deaf and hard-of-hearing individuals in the United States and U.S. territories. Resources include videos in American Sign Language (ASL) on a wide range of topics, a list of universities and education resources by state, webinars and more for deaf and hard-of-hearing people, their families and friends.

  • National Center on Deaf-Blindness

    The National Center on Deaf-Blindness (NCDB) is part of a network of projects for children and youth with deaf-blindness (birth through 21) providing information and learning and development tools for families and educators. NCDB resources include:

    • An overview of deaf-blindness
    • Practice guides and professional development
    • Spanish resources

    NCDB includes state deaf-blind projects in every state, Puerto Rico, the District of Columbia, the Pacific Basin and the Virgin Islands.

  • National Disability Institute

    The National Disability Institute (NDI) collaborates with organizations nationwide to empower people with disabilities and their families to make informed financial decisions and build a better future. NDI offers a wide variety of webinars, tip sheets, information and resources to help people with disabilities achieve employment, financial stability and independence.

    NDI resources include:

    If you have questions, please email info@ndi-inc.org or call (202) 296-2040.

  • National Down Syndrome Society

    The National Down Syndrome Society (NDSS) aims to empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities and shifting public perceptions.

    Its resources include information on Down syndrome across the lifespan as well as in the areas of aging, caregiving, education, employment, health and more.