Health Condition and Disability-Specific Resources
Envision Unlimited’s Community Living Program
Envision Unlimited’s Community Living Program provides a variety of residential living arrangements and supports to adults with Intellectual/Developmental Disabilities (IDD). Services are individualized and person-centered. The intent is to assist each individual to live in the community in a setting most aligned with his/her preferences and those of his/ her guardian. In-home respite is prioritized for individuals who are not receiving any other funded service and who are on the PUNS wait list.
EP!C (Empowering People. Inspiring Capabilities.)
Empowering people. Inspiring capabilities. ( EP!C ) serves individuals with intellectual and developmental disabilities and their families. EP!C helps individuals with disabilities at all levels achieve their goals and live their lives to the fullest by providing a range of programs and services including:
- Educational services
- Community living services
- Employment services
- Harvest horticulture program
- EP!Casso art program
EP!C provides services to individuals in central and some southern Illinois communities.
The Epilepsy Advocacy Network (EAN) seeks to optimize the quality of life of individuals with epilepsy and seizure disorders by promoting community education and awareness, self-advocacy and empowerment, and helping all individuals gain proper access to care. EAN services and supports include:
- Case coordination (epilepsy)/assistance with education services
- Clinic visits
- Support groups
- Financial, transportation and medication resources
- Yearly camp for people ages 8 to 24 with epilepsy
- Seizure response training
It is an affiliate agency of the Epilepsy Alliance of America.
Epilepsy Alliance America is a national organization providing support, care and service to those with epilepsy, their families, caregivers and communities. The organization’s services and supports include:
Epilepsy and Seizures 24/7 Helpline
The Epilepsy Foundation’s Epilepsy and Seizures 24/7 Helpline has trained information specialists to help answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance and access to national and local resources. You can access the helpline in several ways:
- Online Help Form
- Phone (English): (800) 332-1000
- Phone (en español): (866) 748-8008
The helpline serves people living with epilepsy, caregivers and friends of someone with epilepsy and anyone who wants to learn more about epilepsy. It can provide information about current epilepsy treatment and alternative therapies, medication questions, support groups, seizure first aid, emotional support and more.
Epilepsy Foundation of Greater Chicago
The Epilepsy Foundation of Greater Chicago is a not-for-profit organization serving 44 counties in Illinois. It offers education, advocacy and case management to people living with epilepsy, their families and the communities in which they live.
The foundation’s client services include case management, programs for children and adults, epilepsy centers, support groups, employment, medications, and driving and transportation.
Epilepsy Foundation of Greater Southern Illinois
The Epilepsy Foundation of Greater Southern Illinois aims to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. Its programs include epilepsy and seizure support services, home-based services, residential services, epilepsy education programs, support groups, a scholarship and more.
Its website also provides resources including a New to Epilepsy Guide, Seizure Calendar and more.
Epilepsy Foundation of Greater Southern Illinois’ Camp Roehr
The Epilepsy Foundation of Greater Southern Illinois (EFGSI) hosts an annual, overnight camp for children and teenagers with epilepsy. Camp Roehr provides campers ages 6 to 17 with seven days of fun, building friendships and learning about living with epilepsy. Camp registration typically begins in mid-April. Participant requirements include:
- Living in Illinois or surrounding states
- Having a primary diagnosis of epilepsy and well-controlled seizures
- Being able to care for their own basic needs and ready for an overnight camp experience
Every Step of the Way Resource Center for Adults with Intellectual Disabilities
Every Step of the Way (ESW) takes a hands-on, person-centered approach to providing support, networking opportunities and resources for individuals with mild to profound intellectual disabilities ages 20 and up and their parents/caregivers. ESW seeks to create a community where parents/caregivers in Chicago can:
- Find resources for recreation, education, health (mental and physical), social and daily living skills, and behavioral intervention services
- Network with each other
- Brainstorm and collaborate to create programming and develop opportunities for their adult children
- Advocate and network to accommodate the needs of their adult child and the adult children in the ESW community
FacingDisability provides stories, hundreds of paralysis resources and up-to-date information on spinal cord injury. The organization works with medical experts from major hospitals, universities and rehabilitation institutions nationwide to provide insight and inspiration. FacingDisability resource topics include:
- Disability advocates
- Family and caregiver support
- Assistive technology
- Financial assistance and government programs
- Education and employment