Health Condition and Disability-Specific Resources
GiGi’s Virtual Playhouse offers opportunities to build relationships and community connections and access free programming and resources tailored for individuals with Down syndrome. The playhouse serves individuals with Down syndrome of all ages, expecting moms and dads, caregivers, siblings, parents, grandparents, doctors, educators, volunteers and more.
GiGi’s Virtual Playhouse provides a variety of programs focused on therapeutic needs, educational needs, career development and global acceptance. You can log in to the virtual playhouse to access on-demand programs for all ages, resources for supporting a loved one with Down syndrome and communities of other parents, self-advocates and volunteers.
Give an Hour – Rare Caregivers
Give an Hour aims to create resilient communities of support for rare disease caregivers and families. Through one-on-one peer support, group support, professional training and research, Give an Hour strives to build a sustainable support system for rare caregivers.
Visit the Give an Hour Rare Caregivers website to find peer support, self-care tips, support groups and more.
Global Genes is a non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. It aims to connect, empower and inspire the rare disease community.
The Global Genes website includes a RARE Portal, which is an online community for patients, caregivers and more to share resources and create discussion groups.
Grupo SALTO (Sociedad de Autismo Latina Trabajando con Optimismo) aims to provide support in Spanish for Latino families who have children who are differently abled, with a focus on autism.
Grupo SALTO provides culturally and linguistically appropriate training, education and services.
There are many myths about guardianship that people with intellectual and developmental disabilities (IDD) and their families should understand.
The Arc’s Center for Future Planning has created this handout to help.
Guidance for Responding to Incidents Involving Missing Children with Autism
The International Association of Chiefs of Police (IACP) provides law enforcement and caregivers with guidance on preparing for and responding to incidents involving missing children with autism. Information includes:
Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing. They are non-biased about communication methodologies and believe that families can make the best choices for their children if they have access to good information and support.
Hands & Voices Guides and Resources for Deaf/Hard of Hearing Plus
Hands & Voices provides a variety of resources specific to children who are deaf/hard of hearing plus – the combination of being deaf or hard of hearing and having additional medical complexities or other needs.
Information includes the “Connecting Families of Children who are Deaf or Hard of Hearing Plus (DHH Plus) with Resources and Support” guide, an Educational Plan Checklist for D/HH-Plus Students and presentations, articles and other guides for families of children who are D/HH plus.
A number of heart conditions can affect children. Some are structural abnormalities they are born with. Others deal with the electrical system that controls the heartbeat.
HealthyChildren.org, the official parenting site of the American Academy of Pediatrics, provides numerous articles and information about heart conditions, including common heart defects in children, the challenges faced by parents of children with congenital heart disease, dental care for children with heart conditions and more.
Heart of Illinois Down Syndrome Association
The Heart of Illinois Down Syndrome Association offers support and information to help families adjust to the special needs of a child with Down syndrome. Its programs and resources for families and caregivers include Individual Education Program (IEP) resource providers, conference and classroom stipends, and events to increase inclusion and understanding of people with Down syndrome.
The association’s service area in central Illinois includes Peoria, Marshall, Tazewell and Woodford counties.
