Health Condition and Disability-Specific Resources
Illinois Early Hearing Detection and Intervention (EHDI) Program
The Illinois Early Hearing Detection and Intervention (IL EHDI) Program works to ensure families of babies and children who are deaf or hard of hearing receive appropriate and timely services. These services include hearing screening, diagnosis, early intervention and parent-to-parent support, provided through coordinated systems of care.
Families and providers can learn more about the EHDI program and find resources on the Illinois Sound Beginnings website.
Illinois Epilepsy Support and Resources
Illinois Epilepsy Support and Resources provides services to anyone of any age with epilepsy or a seizure disorder who resides in its service area of central and northwest Illinois. Its services include:
- Peer support and support groups
- Caregiver support
- Accessing benefits
- Navigating insurance
- Medical service support
- Access to counseling
- Vocational support
- Help coordinating transportation
For more details, email epilepsy@streatorunlimited.org or call (815) 673-5574.
Illinois Hands & Voices Guide By Your Side (GBYS) is a free program providing unbiased information, one-on-one support and resources and trained Parent Guides to talk and/or meet with you if you have a child with hearing loss or a suspected hearing loss.
Parent Guides are adults who have children with a hearing loss. They provide unbiased information and resources regarding communication, educational and technological choices. They help families identify their options and not tell them which options to choose. They support families and can help them navigate through the many systems and services available in Illinois. They work as a team with professionals offering a well rounded care system for families.
Illinois Hands & Voices is a parent-driven, non-profit organization dedicated to helping families with children who are deaf and hard-of-hearing.
Families can learn about the variety of resources and options available to them and how to access them. Through this network of resources, families can make informed decisions about their future in regards to educational options, the changing landscape of assistive technologies and many other issues facing families with children who are deaf and hard of hearing.
Families within the same geographic region within the state can share experiences and information as they support each other. They can receive the opportunity to gain knowledge and direction from families who have faced the same challenges and choices.
Illinois Life Span’s COVID-19 Resources
The Arc of Illinois provides COVID-19 resources for Illinois residents with developmental disabilities. The topics include general COVID-19 information, Illinois Department of Human Services Developmental Disabilities Services and Supports information and webinar recordings on COVID-19 issues and services.
Illinois Money Wellness
Illinois Money Wellness is a text campaign to encourage good money habits for people with disabilities and the people who support them. Illinois Money Wellness provides one text per week with information on financial wellness resources and advice from the National Disability Institute in collaboration with the Illinois Council on Developmental Disabilities.
You will receive one text per week and your personal information will not be shared with anyone when you sign up for Illinois Money Wellness. You may use this form to sign up or text MONEY to (833) 313-0298.
Illinois Respite Services and Providers List
Respite is a service providing a temporary break between the family caregiver and the care recipient. Illinois offers a variety of respite services for eligible families and individuals.
Illinois Life Span (ILS), a program of The Arc of Illinois, provides fact sheets, information and a listing of respite services/providers currently funded by the Illinois Department of Human Services, Division of Developmental Disabilities. The current listing may be found on their website.
Illinois Seizure Smart School Act Resources
Effective July 1, 2020, the Seizure Smart School Act requires all Illinois school personnel to be trained in seizure first aid. It also requires the development of a Seizure Action Plan for students with epilepsy on how to best care for students with the disorder. A student’s parents or guardians will share their healthcare provider’s instructions on managing the student’s epilepsy and include a copy of any prescriptions and how and when to administer those medicines.
The Epilepsy Foundation of Greater Chicago provides resources and frequently asked questions about the law and what it means for families and schools.
Illinois Spina Bifida Association
The Illinois Spina Bifida Association (ISBA) works to improve the quality of life of children, adults and families with spina bifida. ISBA works to accomplish its mission by:
- Promoting skills development and independence
- Supporting individuals and families through outreach, education and advocacy
- Investing in people by funding scholarships, mobility equipment, research and emergency help
For more information or to participate in these programs, visit ISBA’s website or call (773) 444-0305.
Illinois Spina Bifida Association Vision Referral Program
The Illinois Spina Bifida Association (ISBA) offers a vision referral program in partnership with the Illinois Eye Institute (IEI), which provides specialized services for pediatric patients and people with developmental disabilities.
If anyone in your family needs vision care, ISBA can help you set up an appointment at IEI in Chicago or refer you to other statewide providers offering affordable care regardless of insurance or financial status.