Resource Directory /

Health Condition and Disability-Specific Resources

  • Muscular Dystrophy Association

    The Muscular Dystrophy Association (MDA) provides comprehensive information and resources to help with understanding, managing and living day-to-day with muscular dystrophy and related neuromuscular diseases.

    MDA programs and resources include:

    • The MDA Resource Center providing one-on-one support by phone or email for individuals and families looking for resources, activities and more
    • Durable Medical Equipment (DME) Grant Program
    • Nationwide summer camps
    • Resources for caregivers
    • Community education and services

  • My Heart Visit

    My Heart Visit is a program from Mended Hearts that allows heart patients and their families to connect with trained volunteers who are patients themselves, a parent of a child with a heart condition or a caregiver of a loved one with heart disease.

    You can connect with someone by phone, text, email or video. It includes the Heartline Hotline at (844) 432-7887 (1-844-HEART87).

  • My Special Diet

    A website devoted to the management of a metabolic diet, information about products, recipes.

  • myFace

    myFace is a nonprofit organization that provides individuals and families affected by cleft and other craniofacial differences access to personal stories, education and support.

    Resources include:

    • Information on craniofacial conditions
    • Parent resources
    • Virtual craniofacial support groups and networking opportunities
    • Educational webinars and podcasts

  • National Association for Down Syndrome

    The National Association for Down Syndrome (NADS) serves individuals with Down syndrome and their families. NADS’ website provides a variety of webinars, publications and resources for the Chicago metropolitan area and beyond.

    NADS also offers a “Congratulations Basket and Referral Program.” Please note that the organization can only deliver baskets to specific Chicago-area hospitals.

  • National Association of the Deaf

    The National Association of the Deaf (NAD) preserves and promotes the civil, human and linguistic rights of deaf and hard-of-hearing individuals in the United States and U.S. territories. Resources include videos in American Sign Language (ASL) on a wide range of topics, a list of universities and education resources by state, webinars and more for deaf and hard-of-hearing people, their families and friends.

  • National Center on Deaf-Blindness

    The National Center on Deaf-Blindness (NCDB) is part of a network of projects for children and youth with deaf-blindness (birth through 21) providing information and learning and development tools for families and educators. NCDB resources include:

    • An overview of deaf-blindness
    • Practice guides and professional development
    • Spanish resources

    NCDB includes state deaf-blind projects in every state, Puerto Rico, the District of Columbia, the Pacific Basin and the Virgin Islands.

  • National Consortium on Deaf-Blindsun-icon

    Clearinghouse is a federally funded information and referral service for children ages 0-21 years who are deaf-blind.  Site provides access to a broad spectrum of information at no cost.

  • National Deaf Center on Postsecondary Outcomes

    The National Deaf Center on Postsecondary Outcomes (NDC) shares information, networks, and strategies to improve continuing education and training for deaf people. It offers online courses, online gaming tools for youth, evidence-based resources, webinars and more.

    NDC resources include:

    • Free online learning modules and webinars for teens, college students and professionals
    • Planning tools, tips and more for high school and college students
    • Disability services providers portal and online training modules
    • Deaf culture and awareness resources
    • Deafverse, a choose-your-own-adventure online game created just for deaf teenagers

  • National Down Syndrome Society

    The National Down Syndrome Society (NDSS) aims to empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities and shifting public perceptions.

    Its resources include information on Down syndrome across the lifespan as well as in the areas of aging, caregiving, education, employment, health and more.