Health Condition and Disability-Specific Resources
Rush Autism Resource Directory
The Autism Resource Directory is an online resource guide to help families find service and support referrals in the following counties: Lake, McHenry, Kane, DuPage, Cook, Kendall, Will, Grundy and Kankakee.
For more information or if you have any questions about navigating the directory or finding a referral, please call (312) 563-2272.
Russian Resources for Families and Children Who are Deaf or Hard of Hearing
Hands & Voices is a nationwide, parent-driven organization supporting families with children who are deaf or hard of hearing without a bias around communication modes or methodology.
Hands & Voices working in partnership with the St. Petersburg Early Intervention Institute provides a Russian translation of materials aimed at improving services and child outcomes.
Seizure Action Plan Examples and Resources
A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep them safe from injury or damage caused by prolonged seizures.
The Seizure Action Plan Coalition has several Seizure Action Plan examples and resources in English and Spanish to help you create your own plan. Resources are also available in other languages.
Epilepsy Alliance America manages the Seizure Action Plan Coalition.
Sertoma Organization for People Affected by Hearing Loss
Sertoma provides information and support to people at risk of or affected by hearing loss. National and local chapters across the United States support hearing health through a variety of programs and activities. Sertoma services include annual scholarships, access to amplified hearing devices, teen and college-level service programs, the “Adopt-an-Agency” program and more.
Sertoma offers two scholarship programs:
- The Scholarship for the Hard of Hearing or Deaf is open to students with clinically significant bilateral hearing loss. Graduating high school students or undergraduate students pursuing four-year college degrees in any discipline are eligible for the scholarship.
- The Communicative Disorders Scholarship is for graduate students pursuing advanced degrees in audiology or speech-language pathology from institutions in the United States. The program awards these scholarships in the spring to help offset the cost of tuition, books and fees incurred during the following school year.
See Sertoma’s website for eligibility requirements. The program accepts applications between Nov. 1 and March 31 each year.
Sertoma Star Services in Illinois
Sertoma Star Services (SRS) is a not-for-profit community organization dedicated to challenging the limits and changing the lives of people with intellectual and developmental disabilities and mental illness in the Chicagoland and Northwest Indiana areas. Services include vocational, educational, therapeutic, recreational and residential programs.
Sertoma Star Services programs include:
- Special recreation services for children, teens and adults
- Community living and home-based services
- Life skills enrichment program for adults with intellectual and developmental disabilities
- Janitorial and e-recycling vocational training and long-term job opportunities for adults
The Illinois Deaf and Hard of Hearing Commission has a list of Service Animal Resources. Information includes Americans With Disabilities Act (ADA) requirements, programs that provide animals and more.
Services of Will, Grundy & Kankakee Counties, Inc. (CFC #15) Early Intervention
Provides resources and support for children 0-3 with developmental disabilities in Grundy, Kankakee, and Will Counties.
2300 Glenwood Avenue
Joliet, IL 60436(888) 329-0633
Offers three-year post-secondary educational programs for students with intellectual disabilities. Programs include general education for independence, culinary arts, and horticulture.
1805 15th Avenue
Union Grove, WI 53182-1597
(262) 878-5620
info@shepherdscollege.eduThe Shirley Ryan AbilityLab is a nonprofit hospital providing patient care, a research community focused on physical medicine and rehabilitation, clinical trials and a wide range of resources to help with caregiving, adapting and accessibility. Based in Chicago, the Shirley Ryan AbilityLab provides help with pediatric and adolescent rehabilitation, spinal cord injuries, brain injury recovery, limb loss and impairment, stroke and more.
Shirley Ryan Abilitylab’s Henry B. Betts, MD, Learning, Innovation, Family and Empowerment (LIFE) Center also offers resources to help empower people living with chronic, cognitive and physical impairments and diseases affecting function. Resource topics include:
- Caregiving and equipment
- Housing and transportation
- Inspiration and hope
- Support and wellness
- Recreation and leisure
- Medical information and care
- Education and employment
Siblings with a Mission is an international organization that supports siblings and families of individuals with complex health conditions and developmental disabilities. The organization serves both siblings and sibling supporters (parents, grandparents, friends, healthcare providers, professionals, etc.) of all ages and backgrounds. It provides:
- Sibling support groups focused on a specific diagnosis or disability
- SibSpot, a place where siblings and sibling supporters can read stories about sibling heroes and meet other siblings from around the world
- Resource lists and more