Health Condition and Disability-Specific Resources
The Cerebral Palsy Foundation’s Cerebral Palsy Resource website provides expert insights, fact sheets, stories, blogs, videos, podcasts and more to help individuals with cerebral palsy and their families across the lifespan.
Champaign County Down Syndrome Network
The Champaign County Down Syndrome Network (DSN) provides information and support to families who have members with Down syndrome in Champaign County and east-central Illinois.
DSN serves new parents, professionals and the general public to promote Down syndrome awareness and acceptance year-round.
Champaign County Epilepsy Support Group
The Champaign County Epilepsy Support Group “You Are Not Alone” offers support for anyone with epilepsy or a seizure disorder and their loved ones. The group meets on the first Tuesday of each month from 5 to 6 p.m. at the Champaign Public Library, 200 W. Green Street, in Champaign.
For more information, contact Kristen at kristen@epilepsyadvocacynetwork.org or (217) 621-5842.
The American Heart Association’s Support Network, in partnership with The Children’s Heart Foundation, provides a Congenital Heart Defect (CHD) Support Network for parents of young children diagnosed with CHDs or adults living with a CHD.
Chicago Adaptive Sports provides programming, support and advocacy for individuals with physical and visual disabilities of all ages and backgrounds. The organization adapts programming to meet the needs of individuals who use manual or power wheelchairs or have other ambulatory disabilities such as amputation, cerebral palsy, spina bifida, stroke and other spinal cord or orthopedic impairments. No prior experience is necessary to participate. Financial assistance is available. Participants will not be turned away due to their ability to pay.
Chicago Adaptive Sports programs include:
- Chicago No Limits Fishing
- Wheelchair basketball
- Wheelchair softball
- Wheelchair tennis
- Sled hockey
Chicago Autism Network and Therapy Assistance Grants
The Chicago Autism Network is a nonprofit dedicated to helping locals find and afford effective autism therapy and supports.
The network offers therapy assistance grants for anyone living in Illinois with a current autism diagnosis. It also holds free monthly Autism Parent Workshops.
The Chicago Autism Network also provides a statewide Autism Services Directory to help families connect with services that meet their needs closer to home.
The Chicago Hearing Society (CHS) provides a wide range of programs to support families and connect people who are deaf, deafblind or hard of hearing. Its services include:
- Hearing evaluations and assistive technologies
- American Sign Language classes in English and Spanish
- Community outreach and youth programs
- Interpreter services and captioning
The Child Neurology Foundation (CNF) is a patient advocacy organization offering tools, education resources, and a network of more than 48 organizations to help children and their families living with neurologic conditions find social services and emotional support.
CNF’s Family Support Program helps families navigate the journey of being a caregiver of a child with a neurologic condition. Families can connect with trained staff who will listen and help with:
- Learning about a child neurology disorder and clinical trials
- Connecting to disease-specific organizations
- Talking to another parent
- Navigating insurance and more
Visit the CNF Family Support Program page to learn more. You can request help online or by calling (859) 551-4977.
Children’s Craniofacial Association
Children’s Craniofacial Association (CCA) is a national, nonprofit organization providing resources to empower and give hope to individuals and families affected by craniofacial conditions. CCA resources include:
- Financial assistance
- Educational overviews and video library
- Craniofacial surgery care packages
- Resources for teachers and parents
Visit the Children’s Craniofacial Association website for more details.
Christopher & Dana Reeve Foundation
The Christopher & Dana Reeve Foundation is a nonprofit dedicated to curing spinal cord injury by advancing innovative research and improving quality of life for individuals and families impacted by paralysis.
The website includes:
- A search tool for finding local resources and organizations that support people living with paralysis
- A paralysis resource guide
- Comprehensive resources and support for people living with paralysis and their caregivers
- Information on the inclusive “Outdoors for Everyone” initiative