Health Condition and Disability-Specific Resources
Claire’s Place Foundation for Cystic Fibrosis Support
Claire’s Place Foundation is a non-profit organization providing support to children and families affected by cystic fibrosis (CF).
Its programs are focused on creating a better quality of life for people and their caregivers as well as emergency funding assistance during long hospital stays. Its programs include an Extended Hospital Stay Grant Program and the Support Families and Resources Program.
Clearbrook’s various respite programs offer an array of services to people with intellectual and developmental disabilities. These services are designed to help maintain individuals with developmental disabilities in the individual/family home by providing short-term relief to primary caregivers.
Clearbrook provides respite services in the following counties: Lee, Dekalb, Stephenson, Winnebago, Jo Daviess, Ogle, Boone, Cook, Lake, Will, Kankakee, Grundy, Kendall, Kane, McHenry and DuPage.
Cleft and Craniofacial Condition Resources
HealthyChildren.org, the parenting website of the American Academy of Pediatrics, provides articles and information for parents and caretakers of children with a cleft lip, cleft palate or craniofacial disorder.
CommunicationFIRST advocates to ensure everyone has the support they need to express themselves effectively and be heard. Organization members include people of all ages with over two dozen known and unknown expressive communication-related conditions, congenital and developmental disabilities, and conditions acquired later in life. CommunicationFIRST resources include:
- “The Words We Use” style guide
- Tips for online meetings with augmentative and alternative communication (AAC) users, by AAC users
- The “See us. Hear us.” film series
- The AAC Counts Project
Community Alternatives Unlimited
Community Alternatives Unlimited (CAU) provides a wide range of services for people of all ages with intellectual and developmental disabilities as well as programs to help economically challenged families with health and wellness during pregnancy and birth.
CAU provides residents of the city of Chicago (north side), several northern suburbs and Lake County with services and programs that include:
- Interview for Prioritization of Urgency of Need for Services (PUNS)
- Pre-Admission Screening (PAS) and determinations for eligibility for services
- Individual services and supports
- Connecting new mothers to appropriate medical care, eligible public benefits, support services and community resources
- Information and referral regarding prenatal care, checkups and immunizations, breastfeeding, infant development, family planning and parenting
Community Foundation of Northern Illinois
The Community Foundation of Northern Illinois (CFNIL) provides scholarships, including scholarships for students with intellectual and developmental disabilities, and grants to charitable organizations in Boone, Ogle, Stephenson, and Winnebago counties. Visit CFNIL’s scholarship opportunities page to learn more.
Congenital Heart Defects (CHDs) Fact Sheets and Articles
Congenital heart defects (CHDs) are conditions that are present at birth and can affect the structure of a baby’s heart and the way it works. The Centers for Disease Control and Prevention (CDC) provides fact sheets, articles, patient stories and more to help you understand CHDs and their affect across the lifespan.
Congenital Heart Defects Information
The American Heart Association provides information and resources on congenital heart defects (CHDs).
Information is available in English and Spanish.
Conquering CHD provides awareness, knowledge, community and research to conquer the most common birth defect, congenital heart disease/defects (CHDs).
The Conquering CHD website includes resources to help patients and caregivers understand CHDs from childhood through the teen years and adulthood.
Conquering CHD Transition Checklist
Conquering CHD has put together a Conquering CHD Transition Checklist to help youth with congenital heart disease manage their own care as they reach adulthood and move from their pediatric doctor to an Adult Congenital Heart Disease doctor.