Resource Directory /

Health Condition and Disability-Specific Resources

  • Developmental Disabilities Family Clinic

    As a part of the UIC Department of Disability and Human Development, this clinic provides comprehensive assessment and treatment services for children, adolescents, and adults with developmental disabilities.

  • Developmental Disabilities Transition Resources for Southern Illinois

    Southern Illinois Case Coordination Services (SICCS) provides this Developmental Disability Transition Resources guide to provide an overview of the person-first services and supports for individuals with developmental disabilities and their families.

    SICCS serves Alexander, Bond, Clay, Clinton, Crawford, Edwards, Fayette, Franklin, Gallatin, Hamilton, Hardin, Jackson, Jasper, Jefferson, Johnson, Lawrence, Marion, Massac, Monroe, Perry, Pope, Pulaski, Randolph, Richland, Saline, Union, Wabash, Washington, Wayne, White and Williamson counties.

    Available services include PUNS (Prioritization for Urgency of Need for Services). PUNS is the name for the list of the people in Illinois with developmental disabilities who want or need services but do not yet have funding.

  • Disability Resource Center in Joliet

    The Disability Resource Center provides advocacy, peer support groups, S.K.I.L.L.S. independent living classes, visual impairment services, seminars, workshops and more for people with disabilities in Will and Grundy counties.

    Programs also include:

    • Deaf and hard of hearing services
    • Information and referral (I&R) for accessible housing, where to buy assistive devices, how to secure a sign language interpreter and more
    • Assistive technology for children up to age 23
    • Personal assistance program and information

  • Disability Vote IL

    Disability Vote IL provides voting resources and information for the disability community. The site offers updated nonpartisan videos, webinars and information on elections, how to register to vote, and promoting accessibility of voting technology and polling places. The website also includes information about:

    • The Be My Eyes app that helps people who are blind or have vision impairments with voting
    • Transportation to the polls
    • In-person, nursing home and hospital voting
    • Important dates

  • Down Syndrome Association of Greater St. Louis (DGAGSL) and Metro-East/Southern Illinois Chapters

    The Down Syndrome Association of Greater St. Louis (DGAGSL) serves, supports and celebrates the lives of individuals with Down syndrome and their families. DGAGSL and its chapters provide educational programs, resources and events to help increase awareness and connect families with the help they need for every stage of their child’s life.

    These DGAGSL community groups provide support and coordinate events in southern Illinois and the greater St. Louis area:

  • DSCC’s Point of Entry to Services in Illinois for Individuals With Developmental Disabilities (PUNS) Tip Sheet

    The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare needs and their families learn about registering for PUNS. PUNS stands for Prioritization of Urgency of Need for Services. It is the point of entry to services in Illinois for individuals with developmental disabilities.

    The Illinois Department of Human Services’ Division of Developmental Disabilities uses the PUNS database to identify who needs services and what services they need.

    Children, teens and adults with developmental disabilities who need or want services or supports can enroll in PUNS.

    Point of Entry to Services in Illinois for Individuals With Developmental Disabilities (PUNS) tip sheet in English

    Point of Entry to Services in Illinois for Individuals With Developmental Disabilities (PUNS) tip sheet in Spanish

  • DSCC’s Self-Care Skills Assessment for Parents/Caregivers of Young Adults With Intellectual/Developmental Disabilities

    DSCC’s Self-Care Assessment for Parents/Caregivers of Youth with Intellectual/Development Disabilities is designed to help caregivers of young adults (ages 18 to 25) assess the young adult’s ability to care for their own health. The assessment will help provide information about what your young adult already knows about their health and areas where you/they need to learn more.

    If a young adult is able to fill out this information independently, they should complete the young adult version of this form instead.

    Self-Care Skills Assessment for Parents/Caregivers in English

    Self-Care Skills Assessment for Parents/Caregivers in Spanish

  • Elmhurst Learning and Success Academy (ELSA)

    This four-year program offers a full-time, post-secondary educational experience to young adults with developmental disabilities. Ages 18-28 high school graduates with disabilities can earn certificates in academics, independent living skills and social/recreational skills.

    190 Prospect Avenue
    Elmhurst, IL 60126-3296
    (630) 617-3752
    elsa@elmhurst.edu

  • Emergency Preparedness Tips for Those with Access and Functional Needs

    A guidebook from the Illinois Emergency Management Agency that provides preparedness tips for people with visual, cognitive or mobility impairments; people who are deaf or hard of hearing; those who utilize service animals or life support systems; and senior citizens.

  • Envision Illinois Domestic Violence Resources for People with Disabilities

    Envision Illinois is a statewide collaborative project addressing domestic violence against people with disabilities and Deaf people. Envision Illinois provides various resources designed for all people, families, agencies and organizations working to ensure that survivors with disabilities have equal access to healing, safety and justice.

    Envision Illinois’ website resources include:

    • Case studies and scenarios
    • Fact sheets and social story-type graphics
    • A Mandatory Reporting Toolkit
    • Sample forms and templates
    • Self-advocacy resources