Transition: Healthcare Resources
Navigating Health Insurance and the Health Care System
The Patient Advocate Foundation (PAF) provides valuable information and understanding to patients navigating the healthcare system.
PAF’s Education Resource Library offers information on a wide variety of individual health and health insurance-related topics including:
- Finding and Selecting Insurance
- Making the Most of Your Health Insurance
- Engaging with Insurers: Appealing a Denial
- The Insider’s Guide to Drug Formularies & Medication Benefits
The PAF also offers information and resources in Spanish.
PAF is also available by phone on Monday through Friday from 7:30 a.m. to 4 p.m. at (800) 532-5274.
OutCare aims to be a comprehensive resource for LGBTQ+ healthcare, offering provider and healthcare resource directories.
OutCare’s provider directory provides a list of providers who understand LGBTQ+ needs.
PACER Center Transition and Employment Resources
PACER Center provides information and resources for families of youth with disabilities on transition planning, civil rights, work-based learning, higher education and more.
PACER Center’s Transition Health Plan for Youth with Disabilities and their Families
PACER Center’s Transition Health Plan for Youth with Disabilities and Their Families is designed to help transition-age youth with disabilities and their families assess and plan together the next steps for the youth to take on more responsibility for their own health care.
PACER’s National Parent Center on Transition and Employment
Information and resources for families of youth with disabilities on transition planning, civil rights, work-based learning, higher education and more.
PACER’s Transition Health Plan for Youth with Disabilities and their Families
PACER’s Transition Health Plan for Youth with Disabilities and Their Families is designed to help parents and youth assess where they are at and plan next steps to prepare youth to take on more responsibility for their own health care.
A portable medical summary is helpful for summarizing your medical information in one to two pages. You can use this summary across healthcare systems, including:
- With the emergency department
- In the transition to adult providers
- With your college campus health services and more
The summary can help provide quick and concise communication with all providers involved in your care as you transition to adulthood.
Preparing For College When You Have Congenital Heart Disease
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.
The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.
Resources to Understand and Maximize Your Health Coverage
The Centers for Medicare & Medicaid Services has developed the Coverage to Care (C2C) initiative. C2C provides information to help you understand your health coverage and connect to primary care and the preventive services that are right for you.
Resources are provided in multiple languages and on topics including:
- Five steps for making the most of your health coverage
- Telehealth services
- A step-by-step roadmap to health
- A companion roadmap to behavioral health
- Videos on maximizing your health coverage
Self-Advocacy for People with Disabilities During Hospitalization Tip Sheet
Hospital stays can be difficult for everyone. However, individuals with disabilities may face a variety of unique challenges. This Self-Advocacy for People with Disabilities During Hospitalization tip sheet includes information about your right to have a support person with you any time in the hospital, provider bias, preparing for your hospital stay and self-advocacy resources.