Medical/Health and Wellness Resources
Disability Resource Center in Joliet
The Disability Resource Center provides advocacy, peer support groups, S.K.I.L.L.S. independent living classes, visual impairment services, seminars, workshops and more for people with disabilities in Will and Grundy counties.
Programs also include:
- Deaf and hard of hearing services
- Information and referral (I&R) for accessible housing, where to buy assistive devices, how to secure a sign language interpreter and more
- Assistive technology for children up to age 23
- Personal assistance program and information
Disaster Preparedness for Children and Youth with Special Healthcare Needs
The American Academy of Pediatrics (AAP) provides information on how families of children with special healthcare needs can prepare for potential emergencies and disasters in their area and identify what each child would need to safely prepare for and cope with the disaster.
AAP provides emergency preparedness information and resources, including:
- Tips for helping children cope and adjust after a disaster
- Links to organizations like the Cincinnati Children’s Hospital offering booklets, checklists and other resources you can print or download
- Videos on preparing for an emergency or potential disaster
Discovery Center Museum in Rockford
The Discovery Center Museum is a fully accessible, nationally recognized children’s museum in Rockford, featuring over 300 hands-on exhibits. It follows the Smithsonian Institute’s accessibility guidelines, providing ramps, accessible restrooms, an elevator, and ample space around exhibits. An adult changing table and wheelchairs are also available. Guests can explore ways to make bubbles, a calm space, a giant soft brick playland, and a multi-sensory space to discover the science of optics and light.
To learn more, contact information@discoverycentermuseum.org or call (815) 963-6769.
Do It for the Love inspires hope and healing through music. The non-profit organization grants live concert wishes for people with life-threatening illnesses, children with severe challenges and wounded veterans. You can apply for yourself or your child or nominate someone for a live music wish.
Dove, Inc. provides a variety of outreach programs, financial assistance and resources to residents in Macon, Shelby, Moultrie, Piatt and DeWitt counties.
Dove Financial Assistance (DFA) may be able to provide emergency help with water, power, eye prescriptions, dental needs and some prescription medications.
DFA also works with the Energy Assistance Fund to help people with their heating and cooling bills through the “Warm Neighbors, Cool Friends Program” in Macon, DeWitt and Piatt Counties.
Down Syndrome Association of Greater St. Louis (DGAGSL) and Metro-East/Southern Illinois Chapters
The Down Syndrome Association of Greater St. Louis (DGAGSL) serves, supports and celebrates the lives of individuals with Down syndrome and their families. DGAGSL and its chapters provide educational programs, resources and events to help increase awareness and connect families with the help they need for every stage of their child’s life.
These DGAGSL community groups provide support and coordinate events in southern Illinois and the greater St. Louis area:
- DSAGSL Metro-East Illinois Community Group serves Belleville, O’Fallon, Shiloh, and surrounding areas. Contact Abigail Bosslet at abigail@dsagsl.org or call (314) 833-7560.
- DSAGSL Southern Illinois Community Group serves Carbondale, Creal Springs and surrounding areas. Contact Abigail Bosslet for information.
- DSAGSL Down Syndrome & Autism Dual Diagnosis Group serves families in Missouri and Illinois. Contact Linda Kamphorst at linda@dsagsl.org or (314) 833-8214.
- DSAGSL Black Family Network serves families in Missouri and Illinois. Contact Makini Anwisye at makini@dsagsl.org or (314) 833-7586.
- The National Dance Institute has a series of YouTube videos of their inclusive dance program called the DREAM Project (Dancers Realize Excellence through Arts and Movement). The project provides children with disabilities the opportunity to dance and perform. Each dancer is encouraged to achieve their best through teamwork, creativity, empathy and discovery.
DSCC and Illinois LEND’s Transition Resources for Hispanic Teens in the Chicago Area
The transition to adulthood can be a challenging time for both adolescents and their parents. These challenges can be more difficult when the adolescent has a disability.
Illinois LEND (Leadership Education in Neurodevelopmental and related Disabilities) and the Division of Specialized Care for Children (DSCC) partnered to provide helpful information about the unique challenges Hispanic families can face during the transition to adulthood. This resource list is aimed at transition-age teenagers and their families in the Chicago area:
DSCC Carbon Monoxide and Fire Safety Handout
Basic fire and carbon monoxide protection are key components of maintaining a safe home. The Division of Specialized Care for Children (DSCC) created this handout to provide helpful guidelines on the equipment necessary to protect your home from these preventable dangers.
DSCC’s Adolescence Changing Roles Tip Sheet
Adolescence is a time of change for the whole family. The Division of Specialized Care for Children (DSCC) created this tip sheet to help youth with special healthcare needs and their families support healthy mental, emotional and behavioral (MEB) development, and find ways to cope during this time of change.