Medical/Health and Wellness Resources
Children’s Craniofacial Association
Children’s Craniofacial Association (CCA) is a national, nonprofit organization providing resources to empower and give hope to individuals and families affected by craniofacial conditions. CCA resources include:
Financial assistance
Educational overviews and video library
Craniofacial surgery care packages
Resources for teachers and parentsVisit the Children’s Craniofacial Association website for more details.
City of Chicago Emergency Assistance Registry for People with Disabilities or Special Needs
The City of Chicago has created a voluntary registry for individuals who may need assistance in the event of an emergency.
Individuals with disabilities or special needs or their caregivers can sign up at www.cityofchicago.org/voluntaryregistry/ or contact the Mayor’s Office for People with Disabilities (MOPD) at (312) 744-7050 for additional information.
Cleft and Craniofacial Condition Resources
HealthyChildren.org, the parenting website of the American Academy of Pediatrics, provides articles and information for parents and caretakers of children with a cleft lip, cleft palate or craniofacial disorder.
Clinical Trials-National Institutes of Health (NIH)
Through its Library of Medicine, NIH has developed this site to provide information about clinical research studies.
Community and Residential Services Authority (CRSA)
The Community and Residential Services Authority (CRSA) is an interagency group that identifies and addresses barriers facing parents, families, professionals and providers trying to get needed services and programs for individuals with a behavior disorder or a severe emotional disturbance. CRSA’s free and confidential services include:
Helping agencies, schools and parents form working partnerships using a team approach
Addressing/resolving multiple agency disagreements about residential placement or funding of placement and services
Assisting local communities in developing and strengthening collaborative interagency networking on requestYou can also call CRSA to connect with a program coordinator who will listen and help you develop a plan of care at (877) 541-2772 or (217) 782-2438.
Community Nurse Health Center provides primary medical care and dental care. Services are available to all families and individuals regardless of your insurance status or ability to pay. A sliding fee is available for low-income and uninsured individuals. Medicaid is accepted.
Congenital Heart Defects (CHDs) Fact Sheets and Articles
Congenital heart defects (CHDs) are conditions that are present at birth and can affect the structure of a baby’s heart and the way it works. The Centers for Disease Control and Prevention (CDC) provides fact sheets, articles, patient stories and more to help you understand CHDs and their affect across the lifespan.
Congenital Heart Defects Information
The American Heart Association provides information and resources on congenital heart defects (CHDs).
Information is available in English and Spanish.
Conquering CHD provides awareness, knowledge, community and research to conquer the most common birth defect, congenital heart disease/defects (CHDs).
The Conquering CHD website includes resources to help patients and caregivers understand CHDs from childhood through the teen years and adulthood.
CountyCare COVID-19 Resources for Cook County
CountyCare provides information and resources for Cook County residents on getting vaccinated, and COVID-19 testing and staying up-to-date with boosters.