Resource Directory /

Medical/Health and Wellness Resources

  • Package of Hope for NICU Families

    Lily’s Hope Foundation offers free customized care packages to families with premature babies either in the Neonatal Intensive Care Unit (NICU) or when they are being discharged.

    Its Package of Hope program provides packages customized to a family’s specific needs. A sibling care package is also available.

    Packages are shipped throughout the United States based on availability. One Package of Hope per family.

  • Pediatric Tracheostomy Tube Emergency Management Video

    In this video, nurses from Ann and Robert H. Lurie Children’s Hospital of Chicago describe and demonstrate emergency management for pediatric patients with tracheostomy (trach) tubes. The video covers:

    Prevention and assessment of emergency situations
    How to manage a mucous plug
    How to replace a trach tube that has become dislodged
    What to do if the trach tube is difficult to replace
    When to provide manual ventilation using bag to trach tube, bag and mask to mouth, and mouth to mouth

  • PKU Resources from University of Louisville School of Medicine

    The University of Louisville School of Medicine website provides a wide range of PKU (Phenylketonuria) resources to support families.

    The Family PKU Booklet provides information for families after a positive newborn screening. Using illustrations and clear language, the booklet helps make complicated, scientific information easier to understand.

    The site also includes:

    Caregiver and school preparation tips
    Nutrient trackers
    Downloadable PHE and protein log templates
    Recipes and low protein food suppliers
    PKU community resources

  • Portable Medical Summary

    A portable medical summary is helpful for summarizing your medical information in one to two pages. You can use this summary across healthcare systems, including:

    With the emergency department
    In the transition to adult providers
    With your college campus health services and more

    The summary can help provide quick and concise communication with all providers involved in your care as you transition to adulthood.

  • Premier Kids: Primary Care at La Rabida Children’s Hospital

    Premier Kids is a medical home program for children birth to age 6 with special needs. It provides primary care services for children with medically complex conditions and/or developmental delays. To make an appointment, call (733) 256-5700, ext. 2.

     

  • REACH Learning and Resource Hub

    REACH Learning and Resource Hub provides free, virtual training to help educators, clinicians, parents and caregivers better support the mental health and resilience of the children and youth in their lives. The interactive, on-demand resources focus on:

    Trauma-responsive practices
    Personal and professional resilience
    Social-emotional awareness
    Self-care

  • Region 4 Genetics

    Learn about the newborn screening information in Illinois and bordering states in Region 4.

  • Resources for Inclusion in Physical Activity and Youth with Disability

    The National Center on Health, Physical Activity and Disability (NCHPAD) compiled links to a multitude of resources related to children with disabilities and their inclusion in physical activities in this guide.

  • Resources on Sexual Violence Against People With Disabilities for Self-Advocates, Families and Health Care Professionals

    The Arc’s Talk About Sexual Violence project provides materials and practical tools to help health care professionals, people with disabilities, and their families and supporters learn about the depth of the problem, support victims and work to prevent it.

    Talk About Sexual Violence seeks to empower survivors with disabilities in the reporting process and give health care professionals the tools to more effectively identify victims, connect them to appropriate services, help build their self-advocacy skills and better prevent sexual violence.

    In addition to the “Starting the Conversation Toolkit for Self-Advocates,”  put together by Self-Advocacy Resource and Technical Assistance Center (SARTAC), resources include short training videos for healthcare professionals, tools to help guide conversations and more.

  • Resources to Understand and Maximize Your Health Coverage

    The Centers for Medicare & Medicaid Services has developed the Coverage to Care (C2C) initiative. C2C provides information to help you understand your health coverage and connect to primary care and the preventive services that are right for you.

    Resources are provided in multiple languages and on topics including:

    Five steps for making the most of your health coverage
    Telehealth services
    A step-by-step roadmap to health
    A companion roadmap to behavioral health
    Videos on maximizing your health coverage