Medical/Health Resources
Model Systems Knowledge Translation Center (MSKTC)
The Model Systems Knowledge Translation Center (MSKTC) provides free, easy to understand resources for people living with traumatic brain (TBI), spinal cord (SCI) and burn injuries and their supporters. The research-based resources aim to improve rehabilitation outcomes and quality of life for people living with SCI, TBI, and burn injuries. MSKTC resources are available in a variety of formats including printable PDF documents, videos and slideshows.
The MSKTC website features a wide range user-friendly resources divided by topic:
Mother’s Milk Bank of the Western Great Lakes
Mothers’ Milk Bank of the Western Great Lakes provides safe, pasteurized donor human milk to premature and critically ill babies.
Milk Bank WGL also supports moms who donate milk after loss and distributes reduced-cost or free donor milk to chronically ill middle and low-income children.
This non-profit organization serves over 50 hospitals and hundreds of families throughout Illinois and Wisconsin.
MPHI Center for Precision Public Health
The MPHI Center for Precision Public Health provides educational opportunities for clinicians, public health professionals, community organizations and families. The center focuses on improving the health and well-being of all through research, supporting data-driven initiatives, facilitating community-led program development, and providing technical assistance.
MPHI also provides free CME and CE Modules for families and professionals. Topics include:
- Improving care for developmental disabilities and dysmorphic features
- Patient-centered newborn screening communication
- Decoding genetic test reports for frontline clinicians
Muscular Dystrophy Association
The Muscular Dystrophy Association (MDA) provides comprehensive information and resources to help with understanding, managing and living day-to-day with muscular dystrophy and related neuromuscular diseases.
MDA programs and resources include:
- The MDA Resource Center providing one-on-one support by phone or email for individuals and families looking for resources, activities and more
- Nationwide summer camps
- Resources for caregivers
- Community education and services
A website devoted to the management of a metabolic diet, information about products, recipes.
myFace is a nonprofit organization that provides individuals and families affected by cleft and other craniofacial differences access to personal stories, education and support.
Resources include:
- Information on craniofacial conditions
- Parent resources
- Virtual craniofacial support groups and networking opportunities
- Educational webinars and podcasts
National Alliance on Mental Illness (NAMI)
The National Alliance on Mental Illness (NAMI) is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.
The national NAMI website provides information on supports, services and treatment options that may help. The NAMI National Helpline is (800) 950-NAMI (6264). You can also text “HELPLINE” to 62640 or go to NAMI.org/help to chat with a HelpLine specialist.
Visit the NAMI Illinois website for information about Illinois programs and services.
National Center for Hearing Assessment & Management
Supports early and continuous screening and works to ensure newborns with hearing losses are identified.
National Consortium on Deaf-Blind
Clearinghouse is a federally funded information and referral service for children ages 0-21 years who are deaf-blind. Site provides access to a broad spectrum of information at no cost.
National Down Syndrome Society
The National Down Syndrome Society (NDSS) aims to empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities and shifting public perceptions.
Its resources include information on Down syndrome across the lifespan as well as in the areas of aging, caregiving, education, employment, health and more.