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Find out about news and events for children with special healthcare needs.

To view information specific to your area, visit your Regional Office page. You can also use the search field in the upper right hand corner to narrow your view.  For example, you can search for camps, workshops, a specific topic, or by condition.

Share Your Feedback on Key MFTD Waiver Updates to Strengthen Support for Families

March 26th, 2025


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Families have through Sept. 28, 2024, to share input on waiver amendments allowing CNAs to become paid family caregivers and nursing rate increases. Families have an opportunity to share feedback on several significant updates to…

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New Round of Free At-Home COVID Tests Now Available

March 26th, 2025


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A federal program that provides free at-home COVID-19 tests, including tests with enhanced accessibility, has resumed. Another round of free at-home COVID-19 tests is now available. Starting in late September 2024, every U.S. household can…

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NurseNet Simplifies the Search for In-Home Nursing

March 26th, 2025


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Home Care Program parent praises NurseNet as an easy way to find available nurses in your area The search for in-home nurses can be exhausting for many families of loved ones with complex medical needs….

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Share Your Input at Our Nov. 14 Family Advisory Council Open Forum

March 26th, 2025


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All Illinois families of children with special healthcare needs are welcome to share their feedback and experiences at this virtual forum. Join us for an opportunity to connect with other families and share your feedback…

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New Electronic Visit Verification System for In-Home Nursing

March 26th, 2025


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Electronic Visit Verification (EVV) is a system that electronically documents the time and location of care that in-home nurses provide. We have an important update about the in-home nursing services that Home Care Program families…

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Sensory-Friendly and Inclusive Holiday Events for All Ages

March 26th, 2025


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Experience the magic of the season with Santa visits, light displays and other fun events happening throughout Illinois. The holiday season is a time for joy, connection and celebration. For individuals with sensory sensitivities and…

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